Maggie's Our Angel, Make That Our Angelic Anarchist

In the fall of 2004 we learned that Maggie has a rare genetic disorder, a deletion in her 15th chromosone. Maggie has Angelman Syndrome. AS, as it is commonly referred to, is associated with serious, lifelong disabilities. It has been difficult for us to match the profoundly sad reality of AS, with our loving, happy little girl. Maggie is much more than her diagnosis. We are still caught by moments of heartache for our little girl, but it is impossible to stay down when you are around Maggie. We hope that this website will bring some of her joy to others as well

We continue to add new features to our site. Maggie has her own blog now to keep friends and family members up to date with her adventures. We hope to provide information about AS to our friends and families and others looking for support. But mostly we hope to share the chaos and love that Maggie brings to our world. (Thanks to Holly in the UK, we have been officially charted as Local 2 of the International Union of Angelic Anarchist!)